The Hokey Pokey Chemo
I was just chatting with my friend Linz on IM today about my latest chemo tragedy. The Vanderbilt Regimen of chemo has done nothing to shrink the bad guys in my lungs, so it isn't working. I've had two treatments/rounds and it should have had some impact but it didn't. I told Linz that I go into each kind of new chemo thinking it might be the Magic Bullet to Turn it All Around...and that's What it's All About.
So, next on my tour of all chemo drugs known to mankind is Navelbine. Will it be The Hokey Pokey Chemo that kills cancer dead? We'll see. I haven't asked my oncologist how many treatments we will try before putting me back in the CT scan to check on the bad guys in my lungs. Navelbine is a weekly 3o minute IV drip. It actually sounds alot less bad then the side effects I endured from Vanderbilt Regimen. I mean, I'm totally willing to take an ass kicking to kill cancer with chemo but if the drugs aren't working it sure isn't worth it to feel so bad.
In other news, I have a fractured rib that apparently is an unfortunate result of my pleurodesis surgery. I have had loads of xrays between surgery and now but only the CT scan picked it up. In a way, I feel sort of vindicated because I still have so much surgery site pain and I didn't think I should. But heck, if a rib is fractured right in between both incisions, then it all makes sense.
My birthday is coming up on May 7, and my wedding anniversary is May 5. With all the crap going on with my health, I keep thinking, is this my last birthday? Since finding out about the spread of breat cancer tumors to my lungs, the words "poor prognosis" have been used to describe my condition--one doctor, one assistant and my malpractice lawyer have all used it, although god bless him, my own oncologist has the senstivity not to use those morale-defying word in my presence.
It might be hard to tell but I'm actually feeling better today both emotionally and physically. I even spent about 6 hours at work. I'm going to go to work again tomorrow, I think its good for me, and of course, I need the money. I don't know what I'll do if I get to the point where I am too sick/tired/whatever to work. I have adult-sized expenses and I don't think disability pay lasts forever. Remind me to look into that...what exactly happens to people who become chronically ill and have to stop working? Are they the homeless I see? Do they live on the couch at a relative's house? It seems worth researching.

11 Comments:
We have the same birthday, and the same diagnosis. i am stage 4, grade 3, with mets to spine, bones and liver. Like you, i try to balance all the factors, and keep fighting. You inspire me. Thanks
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Everyone has days when they are down, worn out, health anxiety and just not feeling all that happy.
That's OK, you need to have days like this, otherwise how would you know when you are happy. You need to have something to contrast your happiness with. What is black without white?
Even though you know that sadness (health anxiety) is a part of life, let's try to make it a small part of life.
With that said, here are a few tips to help you feel better when you are feeling down in the dumps. They are easy to do, easy to practice every day and they work!
1. Stand up straight, sit up straight. When your body is in alignment your energy can flow and when your energy is flowing freely, you can flow.
2. Smile! Yes, just smile. Easy to do and effective.
3. Repeat positive affirmations. Things like "I feel good", "Positive energy flows through my body", "I see the good in all".
4. Listen to some music that you like. It doesn't have to be anything specific, just something you enjoy. Certain types of music work better than others, but experiment and see what works for you. Studies have shown that Classical music and new age music work best.
5. Take some time out for yourself, relax and read a book, do something for yourself.
6. Meditate. Meditation is an excellent habit to develop. It will serve you in all that you do. If you are one who has a hard time sitting still, then try some special meditation CDs that coax your brain into the meditative state. Just search for "Meditation music" on Google or Yahoo and explore.
Our outside work is simply a reflection of our inside world. Remember there is no reality just your perception of it. Use this truth to your advantage. Whenever you are sad, realize that it is all in your mind and you do have the power to change your perception.
These tips will lift you up when you are down, but don't just use them when you are sad or health anxiety . Try and practice them everyday, make them a habit. You will be surprised at how these simple exercises will keep the rainy days away.
On a final note, if you are in a deep depression that you can't seem to shake, please go see a doctor. This is your life and don't take any chances. health anxiety
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