what thoughts rattle around in your brain when you're a mom of a toddler and a breast cancer patient?

Saturday, October 22, 2005

Ronne passing

To all the friends, family and fans of the Butterfly, this is her husband, Dan.
I am sorry to post this news but some of you are already aware of it. I just feel that Ronne wanted an ending to this blog and was unable to do so. I will fill in the final blanks.

Shortly after the last blog by Ronne, things went downhill very quickly. After discovering that her remission was over, She started another Chemo regimen. She continued to experience tremendous pain and the only recourse was to increase her morphine dosages. Finally on Sep 27, 2005 Ronne was forced to check into San Diego Hospice for 24 care and pain management as I could no longer care for her at home. This was the hardest decision of my life as Ronne wanted so desperately to not have this happen. After 4 days in hospice it was discovered that the cancer had spread to her spine and hips.

The butterfly finally realized that she would not win this battle and prepared herself to go on to the next life. She said goodbye to her friends and family over the next week as her condition quickly deteriorated. Although extremely sad for the time, in retrospect it was a final gift from her to be able to tell us all individually goodbye. Most people don't get that in life.

Ronne's condition worsened to the point that she was hallucinating and screaming out loud. We were told by the doctors that the cancer had spread to her brain. She was eventually put into a drug induced state of semi consciousness, no longer feeling pain, but no longer lucid or able to communicate with us.

I drove myself close to insane in those final days, trying my hardest to stay at the hospice room with Ronne as I had promised her I would not desert her and that I would be by her side when she passed.

Ronne passed at 315 A.M. Tuesday, October 11, 2005. I held her in my arms until her once powerful and iron willed heart stopped beating , and I cried. I held her and kissed her and talked to her until her best friend, father and step- mom arrived and let them say goodbye. I returned while she was still warm and I held her some more and cried some more, then said goodbye.

Before Ronne became incoherent, I made her a promise. She had raised close to $15,000 for the Susan G. Kommen Foundation for Breast Cancer Research, and had asked me to walk in her place in the annual 3 day 60 mile walk for a cure in San Diego. Three days after Ronne's death, I began the walk and on Sunday, October 16, 2005, I completed the 60 mile walk in her honor. Through the entire 3 day walk, my ankles and feet swelled and blistered, but the pain I carried in my heart was so much worse.

Today, Saturday, October 22, 2005, I will say goodbye to my gorgeous wife's earthly remains as we honor her at Mt. Soledad in La Jolla CA as per her wishes, and scatter her cremated ashes to the wind.

I have lost my wife in her physical self and I mourn this loss with so much sorrow and unspeakable pain in my heart and soul.

She was my soul mate, I loved her the first time I saw her and my only regret in life will be that I did not let her know that sooner. The time I spent with her, first as friends, then as lovers is so precious and the memories of that time here on earth with her will have to do until I see her again.

Although my body is filled with grief for Ronne in every fiber, I know that I will see her again. One reason Ronne held on for so long was for our daughter Jennifer and our daughter Veronica. But she told a friend that she was afraid to go because she thought she wouldn't be able to find us when we joined her later. We told her we would find her. I told her I would find her every day for the rest of my life , I will feel her in the warm sun on my face, hear her in the gentle breeze, feel her in the pulse of the ocean waves, taste her in the sweet salt of the sea and smell her in every rose. I told her I would find her after I leave this earth by following that bright light of a soul that guided us and inspired us here in this life.

Thank you all for following her journey. I just wish she could keep posting her new journeys as well.

I love You Ronne.

Your husband, forever

83 Comments:

Blogger Linz said...

Dan you were an incredible companion, care giver, husband and friend to Ronne. I know how much she loved you, she told me all the time what an incredible man you were the entire length of this battle. She couldn't imagine fighting for so long if it weren't for you lifting her spirit up when she couldn't. Your love for her transcends this world and I know you'll find her again one day.

9:49 PM

 
Anonymous Anonymous said...

I've been reading this blog for months now. I've been checking it every few days lately. I read this post last night, but couldn't respond because I was crying to much. Poor Butterfly!

You and the two little butterflies (cattepillars!?!) have my sincere prayers. May God bless you and heal you and give you peace.

11:50 PM

 
Anonymous Anonymous said...

I have been following Rons story , and morned at her passing. Ron has made alot of women stronger and made alot of us realize more about our selfs and the things we can do . She was a amazing person one with so much strength and so much courage .I never got to meet Ron in this life but someday I hope I get to see the woman who made me realize who I really am . My prayers are with you and your daughters !

8:28 AM

 
Anonymous Anonymous said...

Thank you Dan for sharing this with all of us. I am an Ovusoft member and have followed Ronne's story from day one.

Please be gentle with yourself during this time. I know you and your beautiful daughters will be with her again some day.

10:01 AM

 
Anonymous Anonymous said...

Another Ovusoft member who has been touched by Ronne's journey. What an incredible woman. My heart broke the day I learned that she had passed on.

Thank you for sharing your heart and your wife's story. May you find strength in the days to come as you hold your family close.

I know in my heart that you all will find each other one day, because I'm sure that Ronne will always be close by.

9:07 PM

 
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12:05 PM

 
Anonymous Anonymous said...

To Dan, my son.
Your beautiful tribute to Ronne in the blog you wrote is so awesome. I know haw much you loved Ronne and I was so happy that you had her in your life. I wanted to be so much closer to both of you, but felt you had a very special thing going and you knew I was there in the background if you needed anything. I wanted to be closer to Ronne in her last battle. I sent her prayers and love every day. I got discouraged when she couldn't answer phone calls, but knew she was going through way to much for that to be another chore she had to do. I am forever grateful that I had the chance to visit her at the hospice before she was too far gone to know I was there. To be able to massage her aching legs and feet made me feel at last I was truly doing something for her. The last day that I visited there at the hospice I told her good bye, though she was asleep. I spent quiet time with you and wanted so much to take away the terrible pain I knew you were feeling.
Dan, I love you with all of a mother's heart ,soul and more. I hope I can be there for you during this time. Ronne was an inspirtation to many people. So are you. I am going to try to do the Three day in San Diego next year. I am already signed up officially. I will carry Ronne in my heart every day, but that day will be even more special. I hope the knee holds up so I can do this for Ronne, for you and the girls, and all my daughters and grandaughters, and for everyone who has to face the ugly face of cancer.
Yur writing is beautiful. I know all Ronne's friends and relatives will be touched deeply by the love you share. Be strong, she gave you that. Be brave as you always have been. I love you. Mom

8:37 AM

 
Anonymous Anonymous said...

Dan, I met you at your wife's memorial. I work with your mom - my name is Connie Martinez. Your mom was kind enough to share your comments on behalf of Ronne. They were quite lovely, and indeed from your heart. You are a wonderful man, we should have more fathers, husbands, men like yourself i the world.

God bless you as you continue your life's journey alongside your daughters.

from Connie a May 7th baby, like your beautiful wife Ronnie

12:26 PM

 
Anonymous Anonymous said...

It is unreal that Ronne is not around anymore. She is/was so young. I met her from her sister back in high school days...will always picture her jogging around the school the track in her green and white kilt and playing/practicing with the field hockey team. This has been horrifying and cannot even imagine what it is like for Ronne's family, though hearing some of it. Her sister has been there for her day and night to share her suffering and talk with her and to try to make sense with her of all that was happening to her. Also having a younger sister myself who has a medical condition, keep hearing Ronne's sister's words "can't believe I won't see her again." But thank God she in a peaceful place now and no longer suffering. Thank you, Ronne, for touching us all in this way, and know how many people love and admire you and how much you mean/meant to your sister (haven't met your husband and baby)...lit a candle for you...thinking of you, your sister, your husband and baby and all other loved ones.

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5:58 PM

 
Anonymous Anonymous said...

Dan, I hadn't checked in here in a while, so I hadn't heard this last news. I'm so sorry. I only knew Ronne through her writings here and a couple of emails we exchanged, but that little bit was illuminating, inspiring and heart-touching. I'm so glad she shared her experiences like this. My prayers are with you and your children. ~Jeff Wilkinson

5:19 PM

 
Anonymous Anonymous said...

I really hope you keep this blog content online. Don't let the account lapse. Ronne's writings here are so powerful and touching it'd be a shame if they weren't here.

5:28 PM

 
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Anonymous Anonymous said...

Dan, I am so sorry for your loss. Although I did not know your wonderful wife personally.. I feel as though I have lost a best friend.. Please know you and your family are always in my prayers..

and.. know.. she is with you ALWAYS..

Love to all of you! Ashley

7:49 PM

 
Blogger Orhan Kahn said...

This is probably he sadest thing I have ever read. Please take of yourself, your two daughters and the loving memory of your wife.

6:15 AM

 
Blogger V said...

This is most definitely the saddest blog post I have ever read of my years as a blogger.

May God be with you, Dan.I donot have the words to encourage you, but all I can say is that I hope you remain as strong as you have been.

I'm sure you'll find your wife.

Take care.
And God bless you and your family.
--
Sumedh

7:53 AM

 
Blogger Anooja said...

Dear Dan,
i accidently came across this blog today. It has been awhile since Ronne passed away but i am sure the pain still lives on. I lost an aunt to cancer and my Dad is a cancer survivor.
Please don't let this blog disappear. i do hope you continue updating it so that it doesn't lapse. Hope you are doing good.
Regards and best wishes
Anooja

10:51 AM

 
Blogger Devdas said...

If you really love your wife then she'll never be gone; she'll be with you forever. So don't ever say goodbye. Good luck with your goals my friend. Sorry that I was somewhat late in posting this, but I found this post only now.

3:48 AM

 
Anonymous Anonymous said...

I did not follow any of your wife's blogs until now but I am crying anyway. I am so, soooo sorry for your loss. You write beautifully, I hope you know that. I am feeling your pain because one of my closest freinds is also having a very hard time with her cancer and her chemo therapy and stem sell re-plants didn't work. : (

3:08 PM

 
Blogger Shelly said...

I just came across this post and wanted to say, how lucky Ronne was to have you by her side. Cancer is a terrible creature and I can not wait until there is a cure. My thoughts and prayers are with you and your family. I know this is a long time after she passed but, I know that pain never really leaves. The only consolations is that you will see her again. She will be there waiting for you. You won't have to look, she is with you all day. ((Hugs))

7:48 AM

 
Blogger n. said...

dear dan and the two little butterfies ~
upon reading this beautiful blog, i just wanted to extend my sincerest condolences. cancer touched my life (lost a dear family member to non-hodgkins lymphoma), i empathize with you and know that the loss is still paramount in your lives.

know that because of ronne's story, i will be doing my BSE's regularly (which I have never done before, ever). so i thank her for that.

[a small comfort, i know, but it is one of her ever-lasting impacts of which you can be proud]

take care of yourselves,
n. from winnipeg, manitoba, canada

8:57 AM

 
Blogger cheesemeister said...

Dan,
I just found out about this blog. I am so sad for you and your children. All I can do is wish for peace to you. I'm sorry that Ronnie suffered so toward the end. I believe she is now at peace. I wish I could say something that would soothe your pain but there is nothing that words can express. It's always especially sad when someone dies young.
My sympathies to you.
Cie

2:28 AM

 
Blogger Sunnyside said...

As you come upon this time this year, I send you prayers and hugs. My thoughts are with you.

11:20 PM

 
Blogger Amber said...

Dan, Jennifer and Veronica,

It is so hard to believe that our butterfly has been gone for almost a year. I miss her so...

Thinking of you all...

-Amber

12:19 PM

 
Blogger kari said...

Dan, Jennifer & Veronica ~
Thinking of you this week & knowing how hard this anniversary will be for you all. ((hugs))
Ronne is missed by so many of us...there isn't a day that goes by her spirit isn't remembered & rejoiced. She is still touching lives...she will always be such an inspiration.
Love to you all,
Kari

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No one knows why a breach occurs between a mother and her daughter. I loved Ronne from the moment she was in my womb and recognized her as a young soul, hurrying to life. It took less than 30 minutes for her birth. She was tenacious and grabbed life quickly. At only 6 days old she became very ill. Her doctors gave her the wrong treatment and hours later, I personally drove her to the emergency room, raised hell, and demanded treatment. I was told she either had spinal meningitus or cancer and her chances for survival were low. Five times a day, after her surgery, I went to the hospital to breastfeed her. I was exhausted and alone--no family support whatsoever.

I know I was overprotective of her because I did not want to lose such a brave, beautiful soul. I was not allowed to visit her, or contact her, but she reached out at the end and told me she loved me over the phone.

She is still in contact with me--in my dreams, awake--she calls out to me. No mother ever expects to outlive her children. I would gladly have gone in her place. I still have no contact with her good husband, her beautiful step-daughter, or her own daughter. My calls went unanswered, my gifts returned. I am bereft.

I do not believe this will ever be posted on the blog.

Ronne's birth mom

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